My experience in losing a child came through a miscarriage.
However terrible a time that was it, cannot compare with the devastating diagnosis that one's baby has only a few years to live.
Emily Rapp's moving book, "The Still Point of the Turning World", was written while she was able to mother her late son, Ronan. He was stricken with Tay-Sachs before his first birthday.
This link is an CNN interview with her and how she survived such times.
May it bring peace to those with these particular need.
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